Services for Helpful Websites | Hunterdon Healthcare

Helpful Websites

Listed below are telephone numbers and websites that may provide useful information for Hunterdon County’s 0-21 year-old special needs community.

This resource list is provided by Hunterdon County Special Child Health Services. For further information please contact Susan Freedman at 908-788-6399 or sfreedman@hhsnj.org.

This list is provided for informational and educational purposes only and is not intended as medical advice nor is it intended to create any physician-patient relationship. This information should not substitute for a visit or a consultation with a health care provider. These links are provided as a service. Hunterdon Healthcare System does not endorse any organization, program or service listed here, or their philosophies. Responsibility for the content of these sites rests solely with those organizations.

Local, State, and National Sources of Information, Resources, and Support

Activities, Recreation, etc.

New Jersey State Government

New Jersey Statewide Organizations

Diagnosis-Specific Resources

Early Intervention

New Jersey Prescription and Health Coverage Information

Behavioral Health

National Organizations, Resources, and Government Agencies

Transition to Adult Life

 

Local, State and National Sources of Information, Resources, and Support

 

Hunterdon County and Area Resources

 

Child Development Center at Hunterdon Medical Center
www.hunterdonhealthcare.org
190 Route 31, Flemington, NJ 08822

Child Development Center
Main Number 908-788-6396

Pediatric Rehabilitation 908-788-6396

Occupational & Physical Therapy

Psychological Services

Educational Evaluations

Early Intervention (0-3 years) Service Coordination 908-788-6398

Special Child Health Services Case Management Unit 908-788-6399

Developmental Pediatric Associates 908-788-6650

Speech and Hearing Department 908-788-6424

Hunterdon County Department of Human Services
DIVISION OF SENIOR, DISABILITIES AND VETERANS SERVICES

908-788-1361, 908-788-1372 (VOICE/TDD)
http://www.co.hunterdon.nj.us/aging/disable.htm

Information: available for disability specific local, state and national resources.
Referral: made, as necessary to appropriate agencies for disability specific services.
Systems Case Management: follow-up on referrals to assure delivery of available appropriate services for clients’ specific needs.
Advocacy: identifying specific agencies and/or personnel to guide clients in self-advocacy efforts.
Community Awareness: addressing issues that affect people with disabilities such as handicapped parking, architectural and attitudinal barriers, and the Americans with Disabilities Act.

The Arc of Hunterdon County
908-730-7827, www.archunterdon.org

Family Support, respite, advocacy, distinctive family solutions free in-home behavior program.

Progressive Center for Independent Living
4 Walter E. Foran Blvd., Suite 410, Flemington, NJ 08822
Toll-Free: 1.877.917.4500
TTY: 908-782-1081
Tel: (908) 782-1055,  Fax: 908-782-6025
Email:  info@pcil.org

Website: www.pcil.org

The Progressive Center for Independent Living, Inc. (PCIL) has been empowering the lives of people living with disabilities since 1996. We offer referral and information services, emergency preparedness training, transition services for students, community opportunities, and independent life skills training.

Hunterdon County Housing Rehabilitation Program
Housing Rehabilitation Program
c/o Project Management Office
P.O. Box 2900
Flemington, NJ 08822-2900
PHONE: 908.788.1253 or 908.788.1568 ~ FAX: 908.806.4204

The Hunterdon County Housing Rehabilitation Program is funded by the New Jersey Department of Community Affairs Small Cities Program and managed by Hunterdon County staff. The goal is to maintain safe, accessible and energy-efficient housing by helping eligible residents to correct code violations and other deficiencies in their homes.

Hunterdon Helpline
908-782-4357
info@helplinehc.org

Hunterdon Helpline began 50 years ago as a teen hotline, answering calls from teens about any subject or need and providing them the connection to appropriate programs and services. Over these four decades, Helpline has evolved to where it is today: a 24-hour helpline answering the needs of at-risk populations trying to navigate the system and find answers to their life challenges.

In addition to First Assist, the umbrella division of Helpline that answers a client’s first call, Helpline has a variety of programs and services to assist with emergency needs and family, health and employment needs. Partnering with other organizations in the county, Helpline links clients to their programs and services when appropriate after assessing the client through the intake process.

NORWESCAP
norwescap.org
Main number: 908-454-7000

NORWESCAP offers many programs that assist individuals and families in a variety of ways, below is a sampling of programs offered: Early Head Start, Family Loan Program, First Call For Help, Child & Family Resources, Food Bank, WIC.

Activities, Recreation, etc.

The National Center on Health, Physical Activity and Disability
www.nchpad.org, 1-800-900-8086, e-mail: email@nchpad.org

Founded in 1999, the National Center on Health, Physical Activity and Disability (NCHPAD) is a public health practice and resource center on health promotion for people with disability. NCHPAD seeks to help people with disability and other chronic health conditions achieve health benefits through increased participation in all types of physical and social activities, including fitness and aquatic activities, recreational and sports programs, adaptive equipment usage, and more.

The Hunterdon Outreach Program
http://www.hunterdonoutreach.org/ 
Daniel R. Hendi, 908-797-3638 (cell) 
danhendi@comcast.net

Started in Hunterdon County in the spring of 2003, this program serves to promote and develop different sports for children in our community who are physically or developmentally disabled. Currently, our programs include soccer, basketball, baseball, and tennis. Our program is designed to grow and adapt to the needs of the children and to promote the growth of the program in the community-at-large. Our program introduces these children to sports who are not normally recruited due to their disabilities. All the programs that we conduct are free to the participating athletes. Each program brings volunteers, athletes, and their parents together in a fun and caring environment.

Somerset Hills YMCA
https://www.somersetcountyymca.org/programs/special-needs/children
Somerset Hills YMCA has a variety of programs for kids with special needs.

VSA of NJ: The State Organization on Arts and Disability
703 Jersey Avenue, New Brunswick, NJ 08901
Phone Number(732) 745-3885
TTY: (732) 745-3913, Fax: (732) 745-4524
Email: info@vsanj.org
http://www.vsanj.org

VSA New Jersey offers programs and services in all of the arts disciplines to individuals of all ages, particularly those with disabilities.

NJ Special Olympics
www.sonj.org, 609-896-8000
Local Contact: Kathy Creveling, director-area04@sonj.org
(609) 712-4278

The range of programs: Young Athlete Program Ages 2 to 7 and other programs include: Alpine Skiing, Aquatics, Aquatics, Basketball, Soccer, Bowling, Cross-Country Skiing, Cycling, Equestrian, Golf, Ice Skating, Soccer, Tennis, Track & Field

Riding With Heart
www.RidingWithHeart.org
639 County Road 513, Pittstown, NJ 08867
908-735-5912

Riding with HEART is a 501(C) 3 Non-Profit organization located in Pittstown, NJ on 29+ Green Acres Preserved Farmland. Riding with HEART (RWH) provides a multitude of equine assisted activities and therapies to adults and children that may have physical, cognitive, or emotional disabilities.

Mane Stream
ManeStreamNJ.org
(908) 439-9636

Mane Stream’s mission is to improve the quality of life for individuals with physical, developmental, emotional and medical challenges through a diverse program of equine assisted activities, therapy services, and educational initiatives.

Therapeutic Riding at Centenary
400 Jefferson Street, Hackettstown, NJ 07840
(908) 852-1400
www.centenaryuniversity.edu

Therapeutic Riding At Centenary (TRAC) is a PATH International – Professional Association of Therapeutic Horsemanship International (NARHA) premier accredited center serving North and Central New Jersey.

TRAC is housed at the Centenary Equestrian Center, Califon Road, Long Valley on Schooley’s Mountain.   The center serves children and adults with a variety of disabilities from the surrounding area.  It also offers volunteer opportunities to local high school students and others interested in assisting riders with disabilities.

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New Jersey State Government

NJ Division of Disability Services
1-888-285-3036

NJ’s information and referral phone service for disability-related information.

Perform Care
www.performcarenj.org
1-877-652-7624

Catastrophic Illness in Children Relief Fund
1-800-335-3863
https://www.nj.gov/humanservices/cicrf/home/index.html

The Catastrophic Illness in Children Relief Fund is a financial assistance program for New Jersey Families whose children have an illness or condition otherwise uncovered by insurance, State or Federal programs, or other sources, such as fundraising. The Fund is intended to assist in preserving a family’s ability to cope with the responsibilities which accompany a child’s significant health problems.

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New Jersey Statewide Organizations

Disability Rights New Jersey
www.drnj.org
(609) 292-9742 or (800) 922-7233 In NJ only
(609) 633-7106 (TTY)
advocate@drnj.org

Disability Rights New Jersey is a private, non-profit, consumer-directed organization established to:
-Advocate for and advance the human, civil and legal rights of citizens of New Jersey with disabilities;
-Promote public awareness and recognition of individuals with disabilities as equally entitled members of society;
-Advise and assist persons with disabilities, family members, attorneys and guardians in obtaining and protecting the rights of individuals with disabilities; and
-Provide education, training and technical assistance to individuals with disabilities, the agencies that serve them, advocates, attorneys, professionals, courts, and others regarding the rights of individuals with disabilities.

Traumatic Brain Injury Resources
http://www.drnj.org/tbipage.htm

Back In Action
http://backinaction.drnj.org/home.php

Welcome to Back In Action, a “classified ads” feature that connects people with available assistive technology (AT)! Back In Action is a project of the Assistive Technology Advocacy Center (ATAC), a program of DRNJ.

Elizabeth M. Boggs Center on Developmental Disabilities
rwjms.umdnj.edu/boggscenter
(732) 235-9300

The Boggs Center is New Jersey’s federally designated University Center for Excellence in Developmental Disabilities and is part of Rutgers Robert Wood Johnson Medical School, Department of Pediatrics. Since its inception in 1983, The Center has emphasized a community based, lifespan approach to meeting the needs of individuals with developmental disabilities and their families.

The Arc of New Jersey
www.arcnj.org
732-246-2525

The Arc of New Jersey is the state’s largest organization advocating for and serving children and adults with intellectual and developmental disabilities and their families.

SPAN Parent Advocacy Network
http://www.spanadvocacy.org/
1-800-654-SPAN
Phone: 973-642-8100 Fax: 973-642-8080

The SPAN Parent Advocacy Network is an independent 501(c)3 organization committed to empowering families as advocates and partners in improving education, health, and mental health outcomes for infants, toddlers, children, and youth.

NJ Statewide Parent to Parent
https://spanadvocacy.org/programs/

SPAN’s Statewide Parent to Parent program gives families the skills and support they need to help their children with special needs reach their full potential and to help them feel less isolated and more confident about themselves.  SPAN is the New Jersey affiliate of Parent to Parent USA.

Family Support Center of New Jersey
www.fscnj.org
1-800-372-6510

The Family Support Center is a clearinghouse of up-to-date information on a national, state and local family support programs, services and disabilities. The Center offers a “One-Stop-Shopping” approach to individuals seeking information on disabilities and services by providing them with easy access to a comprehensive array of services.

New Jersey Adoption Resource Clearing House (NJ ARCH)
Warm-line: 1-877-4ARCHNJ (1-877-427-2465)
e-mail: warmline@njarch.org
www.njarch.com

NJ ARCH is a State-Funded service that provides support to all members of the adoption constellation. Our goal is to direct people to appropriate adoption services in New Jersey.

Warm Line

The NJ ARCH Warm Line provides information, resources, and an empathic ear. Whether you need help with adoption issues, have questions about how to start the adoption process or just had a difficult day with your adopted child(ren), you will receive a supportive reception when you call NJ ARCH. Our warm line team members provide telephone consultation and are happy to direct you to the services you need for you or your family.  Both English and Spanish speaking representatives are available. The Warm Line is staffed 40 hours per week.  Leave a message anytime and your call will be returned within one business day.

Our toll-free Warm Line number: (877) 4ARCHNJ or (877) 427-2465

Mom2Mom
www.Mom2Mom.us.com
1-877-914-6662

Peer to peer helpline, parents can call 24 hours a day 7 days a week to speak with the mother of a child with special needs. Mothers with special needs children are at risk for depression and related disorders (Reuters, 4/18/2008). Studies show parents of special needs children have significantly higher divorce rates than those with typically developing children. Medical illness, financial stressors, faith-based issues, and employment struggles often accompany the challenges of being a primary caregiver of a special needs child.

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Diagnosis-Specific Resources

Fetal Alcohol Syndrome
https://www.state.nj.us/humanservices/opmrdd/fasd/

Information/Resources for the prevention, diagnosis, and treatment of Fetal Alcohol Syndrome.

POAC
www.poac.net
732-785-1099
info@poac.net

Advocacy and education. NJ’s leading provider of free autism training and education for parents, teachers, school bus drivers, emergency responders, etc. All presentations and events open to any family/child that has a disability (not just an autism spectrum disorder).

Aspen Asperger Syndrome Education Network
www.aspennj.org
Phone: (732) 321-0880

ASPEN provides families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities with:

  • Education about the issues surrounding the disorders.
  • Support in knowing that they are not alone, and in helping individuals with ASD’s and NLD achieve their maximum potential.
  • Advocacy in areas of appropriate educational programs, medical research funding, adult issues, and increased public awareness and understanding.

Autism NJ
https://www.autismnj.org/
1-800-4-AUTISM

Autism New Jersey is a nonprofit agency committed to ensuring safe and fulfilling lives for individuals with autism, their families, and the professionals who support them. Through awareness, credible information, education, and public policy initiatives, Autism New Jersey leads the way to lifelong individualized services provided with skill and compassion. We recognize the autism community’s many contributions to society and work to enhance their resilience, abilities, and quality of life. Facilitated support groups, education, advocacy, publications and more.

Organization for Autism Research (OAR)
www.researchautism.org

Great publications for parents and professionals. Life Journey through Autism Series includes: A Parent’s Guide to Assessment, A Parent’s Guide to Research and A Guide for Transition to Adulthood

Autism Speaks
www.autismspeaks.org
Call us! (888) 288-4762
En Español (888) 772-9050
Email us: familyservices@autismspeaks.org

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Autism Society of America
http://www.autism-society.org/
1-800-3-AUTISM

Founded in 1965 by Dr. Bernard Rimland, Dr. Ruth Sullivan and many other parents of children with autism, the Autism Society is the leading source of trusted and reliable information about autism. Through its national network, the Autism Society has spearheaded numerous pieces of federal, state and local legislation, including the 2006 Combating Autism Act, the first federal autism-specific law. The Autism Society’s website is one of the most visited websites on autism in the world and our online resource database, Autism Source™, and National Contact Center (800-3-AUTISM) provide information and service referrals to thousands of people each year.

Down Syndrome Association of Central New Jersey
http://dsacnj.shutterfly.com
180 Ewingville Road, Ewing, NJ 08638
908-303-5506
Email: dsacnj@arcmercer.org

The Down Syndrome Association of Central New Jersey is a non-profit parent support group, established to assist families of children and adults with Down Syndrome.

Bucks County Downs Syndrome Interest Group
https://bcdsig.wordpress.com/
215-290-3118
Email:  mariahdrenth@gmail.com or  erik.weiner2@aol.com

National Down Syndrome Congress
https://www.ndsccenter.org/

The National Down Syndrome Congress is dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.

The New Parent Package is a collection of materials refined over the years to provide new and expectant parents with an initial understanding of the challenges – and joys – of raising a child with Down syndrome. You will also find a wide array of current, expert articles, recommended reading and answers to the most frequently asked questions regarding Down syndrome. If you need further information, please contact the NDSC Center by calling, toll-free, 1-800-232-NDSC or emailing: info@NDSCcenter.org.

New and Expectant Parents

 

National Down Syndrome Society
www.ndss.org/

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

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Early Intervention

New Jersey Early Intervention Services
www.njeis.org

This website was created by the regional early intervention collaboratives in New Jersey. There is basic information on each collaborative, and the Transition Handbook is available here.

Early Childhood Technical Assistance Center
www.ecta.org
Phone: (919) 962-2001
Fax: (919) 966-7463
E-mail: ectacenter@unc.edu

The ECTA Center supports state Part C and Section 619 programs in developing high-quality early intervention and preschool special education service systems, increasing local implementation of evidence-based practices, and enhancing outcomes for young children with disabilities and their families.

Zero to Three
www.zerotothree.org
1255 23rd Street, NW, Suite 350
Washington, DC 20037
(202) 638-1144, (800) 899-4301

Information about infant development in the first three years.

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New Jersey Prescription and Health Coverage Information

New Jersey Prescription Drug Price Registry
www.njdrugprices.nj.gov
1-800-242-5846 (toll-free in NJ)

This drug list with prices will be updated weekly. The prices displayed for each drug are from the most recent claims submitted by licensed New Jersey pharmacies to the New Jersey Division of Medical Assistance and Health Services as their “usual and customary” prices. The usual and customary prices of a drug should be comparable to the cash price the retail customer will be charged by the pharmacy. For a number of reasons, the prices actually charged by your pharmacy may not be the same price that appears on the Registry. The prices of prescription drugs may vary from day-to-day. Also, the unit price on the Registry is based upon the quantity purchased in the last reported claim. The prices contained in this registry are meant to help you compare prices at different pharmacies and are not a guaranteed price. Always call or visit your pharmacy to find out the price before buying your medication.

Prescription Assistance

Hunterdon County Medication Access Partnership helps to find coverage for prescription medication.

Partnership for Prescription Assistance
https://www.pparx.org/

Our mission is to increase awareness of patient assistance programs and boost enrollment of eligible individuals. We offer a single point of access to more than 475 public and private programs, including about 200 programs offered by biopharmaceutical companies. We’ve helped millions of Americans to get prescription drugs for free or at very low-cost drugs.

NJ FamilyCare
1-800-701-0710
1-800-701-0720 TTY
http://www.njfamilycare.org

NJ FamilyCare – New Jersey’s publicly funded health insurance program – includes CHIP, Medicaid, and Medicaid expansion populations. That means qualified NJ residents of any age may be eligible for free or low-cost health insurance that covers doctor visits, prescriptions, vision, dental care, mental health and substance use services, and even hospitalization.

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Behavioral Health

The National Association for the Dually Diagnosed
www.thenadd.org
(845) 331-4336, (800) 331-5362
info@thenadd.org

An association for persons with developmental disabilities and mental health needs. NADD is the leading North American expert in providing professionals, educators, policymakers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care.

PerformCare New Jersey
1-877-652-7624, 24-hour hotline
1-877-652-7624, TTY 1-866-896-6975
http://www.performcarenj.org/index.aspx

Mobilization and Emergency Response, Youth Case Management Services. See below for the Care Management Organization & Family Support Organization.

Tri-County Care Management Organization for Hunterdon, Somerset & Warren Counties
908-526-3900
www.tricountycmo.org

The Tri-County Care Management Organization understands that the health, wellness, and safety of the family matters. In affiliation with our system of care and community partners, we bring together resources to meet the current needs of children and their families with complex behavioral, emotional, social and mental health challenges.

Family Support Organization for Hunterdon, Somerset & Warren
908-223-1191
www.fso-hsw.org

The Family Support Organization of Hunterdon, Somerset and Warren Counties is a partner within New Jersey’s Division of Children’s System of Care. We provide direct peer-to-peer support to the family members and caregivers of children with special emotional and behavioral needs.

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National Organizations, Resources, and Government Agencies

Maternal and Child Health Library Children and Adolescents with Special Health Care Needs
https://www.mchoralhealth.org/highlights/children-with-special-health-care-needs.php

A collection of selected resources offers high-quality information about children and adolescents with special health care needs. Includes databases, hotlines, electronic publications and website listings and links specifically regarding children and adolescents with special health care needs. Includes everything from adolescent transition, financing services, home modifications and health insurance to hospice and palliative care to community interactions.

Centers for Disease Control and Prevention, Your Online Source for Credible Health Information
www.cdc.gov

U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA)
https://mchb.hrsa.gov/

Data, research, and information on children and youth with special health care needs.

National Institutes of Health, The Nation’s Medical Research Agency
www.nih.gov

Social Security Administration
1-800-772-1213
www.ssa.gov

Benefits for Children with Disabilities www.ssa.gov/pubs/10026.html

National Institute of Neurologic Disorders and Stroke
www.ninds.nih.gov

Education Resources Information Center (ERIC)
www.eric.ed.gov

The ERIC mission is to provide a comprehensive, easy-to-use, searchable, Internet-based bibliographic and full-text database of education research and information.

Family Voices
http://www.familyvoices.org/

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families with tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

Sibling Support Project
www.siblingsupport.org

The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.

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Transition to Adult Life

Hunterdon County Surrogate
http://www.co.hunterdon.nj.us/depts/surrog/message.htm
908-788-1156
Surrogate: Ms. Susan J. Hoffman, shoffman@co.hunterdon.nj.us

New Jersey Department of Human Services Division of Developmental Disabilities

Bureau of Guardianship
http://www.state.nj.us/humanservices/ddd/services/guardianship/

The website includes: Bureau of Guardianship Frequently Asked Questions, Fact Sheets including Role of Guardian and Family Guide to Court Process.

Division of Vocational Rehabilitation Services
www.wnjpin.state.nj.us
908-704-3030 or 877-872-5627

NJ Housing Resource Center
www.njhousing.gov

Association on Higher Education and Disability
http://www.ahead.org/

The HEATH Resource Center
http://www.heath.gwu.edu/

The HEATH Resource Center provides online, web-based resources on post-secondary education for individuals with disabilities.

The Organization for Autism Research (OAR)
http://www.researchautism.org

Uses applied science to answer questions that parents, families, individuals with autism, teachers, and caregivers confront daily. No other autism organization has this singular focus.

Great booklets (many also published in Spanish) that can be downloaded, these are a few: A Parent’s Guide to Research, A Parent’s Guide to Assessment, A Guide to Transition for Adulthood, A Teacher’s Guide to Autism

Kids as Self Advocates (KASA)
http://www.fvkasa.org

Kids As Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth. We are teens and young adults with disabilities speaking out. KASA knows youth can make choices and advocate for themselves if they have the information and support they need.

Association For Driver Rehabilitation Specialists (ADED)
www.driver-ed.org

ADED, a nonprofit association is the primary professional organization in the field of driver education/driver training and transportation equipment modifications for persons with disabilities through education and information dissemination. Eight sites listed in NJ.

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