Helpful Links
Listed below are web sites that may provide useful information for Hunterdon County's 0-21 year old special needs community.
Hunterdon County Special Child Health Services has provided this list of websites that may be useful for finding information and support. For further information please contact Susan Freedman at 908-788-6399 or freedman.susan@hunterdonhealthcare.org
Local, state and national sources of information, resources and support
Hunterdon County and Area Resources
Hunterdon County Department of Human Services Office on Disability
908-788-1361 908-788-1372 (VOICE/TDD)
http://www.co.hunterdon.nj.us/depts/humansv/disable.htm
Information: available for disability specific local, state and national resources.
Referral: made, as necessary to appropriate agencies for disability specific services.
Systems Case Management: follow-up on referrals to assure delivery of available appropriate services for clients' specific needs.
Advocacy: identifying specific agencies and/or personnel to guide clients in self-advocacy efforts.
Community Awareness: addressing issues which affect people with disabilities such as handicapped parking, architectural and attitudinal barriers, and the Americans with Disabilities Act.
The Arc of Hunterdon County
908-730-7827
www.archunterdon.org
Family Support, Respite, Advocacy, Distinctive Family Solutions free in-home behavior program.
Progressive Center for Independent Living
908-782-1055, Toll free: 1-877-376-9174
FAX: 908-782-6025
TTY: 908-782-1081
www.pcil.org
The Progressive Center for Independent Living, Inc. (PCIL) advocates for the rights of people with disabilities to achieve and maintain independent lifestyles. Through promotion of choice, self-direction and inclusion, PCIL works with people with disabilities and their families to ensure the same freedoms and civil liberties as everyone else. Transition to adult life specialist on staff.
The Hunterdon Outreach Program
http://www.hunterdonoutreach.org/
Started in Hunterdon County in the Spring of 2003, serves to promote and develop different sports for children in our Community who are physically or developmentally disabled. Currently, our programs include Soccer, Basketball, Baseball and Tennis. Our program is designed to grow and adapt to the needs of the children and to promote the growth of the program in the Community-at-large. Our program introduces these children to the sports who are not normally recruited due to their disabilities. All the programs that we conduct are free to the participating athletes. Each program brings the volunteers, athletes, and their parents together in a fun and caring environment.
NORWESCAP offers many programs that assist individuals and families in a variety of ways, below is a sampling of programs offered.
Main number 908-454-7000, Hunterdon County number 908-782-8183
www.norwescap.org
Early Head Start
Family Loan Program
First Call For Help
Child & Family Resources
Food Bank
WIC
Somerset Hills YMCA
Somerset Hills YMCA has a variety of programs for kids with special needs
http://www.somersethillsymca.org
Saturdays in Motion is a program designed for families with children who have autism;
S.N.A.P. Special Needs Adult Program: a social group designed to bring together young adults with special needs, aged 15 and over;
Special Olympics offers training for young people interested in competitive swimming;
S.T.A.R.S. is a swim program for children with special needs;
Creative Movement is a dance class for special needs children ages 6-10.
New Jersey Statewide Organizations, Resources and Government Agencies
Statewide Parent Advocacy Network (SPAN)
www.spannj.org
The web site for the Statewide Parent Advocacy Network (SPAN) SPAN provides information and advocacy for kids with special needs. The website has a wide range of useful publications.
NJ Statewide Parent to Parent
www.spannj.org/familywrap/parent2parent.htm
This is the site for the NJ Statewide Parent to Parent system. It also has links to other sites.
Disability Rights NJ (formerly NJ Protection and Advocacy)
(609) 292-9742 or (800) 922-7233 in NJ Only
(609) 633-7106 (TTY)
www.drnj.org
Disability Rights New Jersey (DRNJ) is the consumer-directed, non-profit organization that serves as New Jersey's designated protection and advocacy system for people with disabilities in the state.
In partnership with individuals with disabilities and their families, DRNJ works to protect and advance the rights of people with disabilities. DRNJ provides information and referral and a broad range of advocacy services, including legal representation in numerous cases in state and federal courts.
Back In Action
http://backinaction.njpanda.org/
Welcome to Back In Action, a “classified ads” feature that connects people with available assistive technology (AT)! Back In Action is a project of the Assistive Technology Advocacy Center (ATAC), a program of DISABILITY RIGHTS NEW JERSEY (or DRNJ). DRNJ is a nonprofit corporation created under the laws of New Jersey.
Fetal Alcohol Syndrome
http://beintheknownj.org/
Be in the Know, State of New Jersey Fetal Alcohol Task Force website. Information/Resources for prevention, diagnosis and treatment of Fetal Alcohol Syndrome
State of New Jersey Employee Phone Directory
www.state.nj.us/nj/govinfo/njgov/employeephone.html
State of New Jersey Department of Children and Families Behavioral Health Services
1-877-652-7624, 24 hour hotline
http://www.nj.gov/dcf/behavioral/help/index.html
Mobilization and Emergency Response, Youth Case Management Services, See below for Care Management Organization & Family Support Organization
Tri County Care Management Organization for Hunterdon, Somerset and Warren
908-526-3900
www.tricountycmo.org
Family Support Organization for Hunterdon, Somerset and Warren
908-213-9932
www.fso-hsw.org
To report suspected child abuse or neglect, please call 1-877-NJ Abuse
New Jersey Department of Health and Senior Services
http://www.state.nj.us/health/fhs/sch/index.shtml
Family Health Services Special Child Health Services
Early Intervention System
Case Management Units
Early Detection and Newborn Screening and Testing Programs
Resources for Specific Conditions: Statewide referral networks that provide comprehensive diagnosis, treatment, patient and family education, and counseling for children and adults living with:
Autism
Cleft Lip/Palate
Developmental and Behavioral Evaluation Centers
Hemophilia
HIV and AIDS
Phenylketonuria (PKU)
Sickle Cell Disease
New Jersey Department of Health and Senior Services
The Governor’s Council for Medical Research and Treatment of Autism
http://www.state.nj.us/health/autism/index.shtml
New Jersey Health Link
www.nj.gov/njhealthlink
New Jersey HealthLink is the nation’s most comprehensive healthcare consumer information website serving seniors, families, children and healthcare professionals.
Information on: Uninsured and Underinsured Children and Families, Treatment/Screening Centers, Emergency Resources/Hotlines, Mental Health, Addiction, and more.
New Jersey’s Family Health Line can help you locate health information and services.
800-328-3838.
New Jersey Division of Consumer Affairs
http://www.njconsumeraffairs.gov/
· Licensee Searches
· Product Safety Recalls
· Charity Searches
New Jersey Prescription Drug Price Registry
1-800-242-5846 (toll-free in NJ)
www.njdrugprices.nj.gov
This drug list with prices will be updated weekly. The prices displayed for each drug are from the most recent claims submitted by licensed New Jersey pharmacies to the New Jersey Division of Medical Assistance and Health Services as their "usual and customary" prices. The usual and customary prices of a drug should be comparable to the cash price the retail customer will be charged by the pharmacy.
For a number of reasons, the prices actually charged by your pharmacy may not be the same price that appears on the Registry. The prices of prescription drugs may vary from day to day. Also, the unit price on the Registry is based upon the quantity purchased in the last reported claim. The prices contained in this registry are meant to help you compare prices at different pharmacies and are not a guaranteed price. Always call or visit your pharmacy to find out the price before buying your medication.
New Jersey State Library's Website
www.njstatelib.org
New Jersey Department of Human Services
www.state.nj.us/humanservices/
Addiction Services
Catastrophic Illness
Commission for the Blind
Deaf & Hard of Hearing
Developmental Disabilities
Disability Services
Family Development
Medical Assistance & Health Services
Mental Health Services
Catastrophic Illness in Children Relief Fund
1-800-335-3863
http://www.state.nj.us/humanservices/catill/catill1.htm
New Jersey Traumatic Brain Injury Fund
Phone: 1-888-285-3036 (press 2)
http://www.state.nj.us/humanservices/dds/Traumatic_Brain_Injury_Fund.htm
New Jersey Department of Children and Families
http://www.state.nj.us/dcf/resources/
New Jersey Department of Education Office of Special Education
www.nj.gov/education/specialed/
New Jersey Council on Developmental Disabilities
http://www.njcdd.org
New Jersey Adoption Resource Clearing House (NJ ARCH)
Warm-line: 1-877-4ARCHNJ (1-877-427-2465)
e-mail: warmline@njarch.org.
www.njarch.com
NJ ARCH is a State-Funded service that provides support to all members of the adoption constellation.* Our goal is to direct people to appropriate adoption services in New Jersey. *The adoption constellation includes anyone whose life is touched by adoption, including those who receive and/or deliver services.
Elizabeth M. Boggs Center on Developmental Disabilities
rwjms.umdnj.edu/boggscenter
The Elizabeth M. Boggs Center on Developmental Disabilities is New Jersey’s federally designated University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD). The Boggs Center is part of the University of Medicine and Dentistry of New Jersey (UMDNJ) – Robert Wood Johnson Medical School, Department of Pediatrics. Since its inception in 1983, The Center has emphasized a community based, life span approach to meeting the needs of individuals with developmental disabilities and their families.
The Arc of New Jersey
www.arcnj.org
You may have visited the ARC web site before, but if you haven't been there recently or didn't notice it, they have a fairly new publication series, The Education Advocate. The Education Advocate is an excellent source of quality, up to date information. It offers incredibly relevant monthly newsletters and fact sheets that aren't so long and detailed that you get lost in them. Topics such as, 'Preparing for your child's IEP meeting', 'Extended School Year', and 'Education Advocacy: Record Keeping' and 'Common Mistakes in Developing an IEP.'
Asperger Syndrome Education Network
www.aspennj.org
Autism NJ, formerly COSAC
www.njcosac.org
Web site for The New Jersey Center for Outreach & Services for the Autism Community. Facilitated support groups, education, advocacy, publications and more.
New Jersey Early Intervention Services
www.njeis.org
This Web site was created by the regional early intervention collaboratives in New Jersey. There is basic information on each collaborative, and the Transition Handbook is available here.
National Organizations, Resources and Government Agencies
Maternal and Child Health Library Children and Adolescents with Special Health Care Needs
www.mchlibrary.info/knowledgepaths/kp_cshcn.html#data
The most comprehensive listing of information regarding children with special needs that I’ve ever seen. Includes databases, hotlines, electronic publications and web site listings and links specifically regarding children and adolescents with special health care needs. Includes everything from Adolescent Transition, Financing Services, Home Modifications and Health Insurance to Hospice and Palliative Care to Community Interactions.
National Dissemination Center for Children with Disabilities
www.nichcy.org
NICHCY is very pleased to offer you a wealth of information on disabilities! NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on:
disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
Centers for Disease Control and Prevention, Your Online Source for Credible Health Information
www.cdc.gov
U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA)
mchb.hrsa.gov/programs/default.htm
Data, research and information on Children and Youth with Special Health Care Needs
National Institute of Neurologic Disorders and Stroke
www.ninds.gov
National Institutes of Health, The Nation’s Medical Research Agency
www.nih.gov
Social Security Administration
www.ssa.com
Benefits for Children with Disabilities www.ssa.gov/pubs/10026.html
Education Resources Information Center (ERIC)
www.eric.ed.gov
The ERIC mission is to provide a comprehensive, easy-to-use, searchable, Internet-based bibliographic and full-text database of education research and information that also meets the requirements of the Education Sciences Reform Act of 2002
Family Voices
http://www.familyvoices.org/
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Band-Aids and Blackboards
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
This is a site about growing up with medical problems of any type. Its goal is to help people understand what it's like, from the perspective of the children and teens who are doing just that.
Sibling Support Project
www.siblingsupport.org
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
The Office of Special Education and Rehabilitative Services
(US Department of Education)
www.ed.gov/about/offices/list/osers/index.html
The Rehabilitation Engineering Research Consortium on Communication Enhancment(AAC-RERC)
www.aac-rerc.com
National Tourette Syndrome Association
http://www.tsa-usa.org/
THE TOURETTE SYNDROME ASSOCIATION OF NEW JERSEY, INC.-a chapter of the national Tourette Syndrome Association-is a non-profit organization whose membership includes individuals with Tourette Syndrome, their families and friends, and interested professionals.
Our mission is to support the needs of families with TS, to advocate for individuals with TS and to educate the public and professionals on TS.
CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder)
www.chadd.org
CHADD is the nation's leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.
National Down Syndrome Congress’ New Parent Package
http://www.ndsccenter.org/resources/background.php
New Parent Package; a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges – and joys – of raising a child with Down syndrome. You will also find a wide array of current, expert articles, recommended reading and answers to the most frequently asked questions regarding Down syndrome. If you need further information, please contact the NDSC Center by calling, toll-free, 1-800-232-NDSC or emailing us at info@NDSCcenter.org.
National Down Syndrome Society
www.ndss.org/
Down Syndrome Association of Central New Jersey
866-369-6796 or 609-406-9258
www.dsacnj.org
180 Ewingville Road, Ewing, NJ 08638
Email: dsacnj@arcmercer.org
Bucks County Downs Syndrome Interest Group
215-766-0890
Email: mdrenth@drenth.com
www.bcdsig.org
Kintnersville, PA, 18930
Down Syndrome Group of Northwest New Jersey
908-689-7525 ext.320
www.dsgnwnj.org
P.O. Box 212, Washington, NJ 07882
United Cerebral Palsy
www.ucp.org
Association on Higher Education and Disability
http://www.ahead.org/
The HEATH Resource Center
http://www.heath.gwu.edu/
The HEATH Resource Center provides online, web based resources on postsecondary education for individuals with disabilities.
The Organization for Autism Research (OAR)
http://www.researchautism.org
Uses applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
Great booklets (many also published in Spanish) that can be downloaded, these are a few: A Parent’s Guide to Research, A Parent’s Guide to Assessment, A Guide to Transition for Adulthood, A Teacher’s Guide to Autism
Individuals with Disabilities Education Act
www.ideapractices.org
This site answers your questions about The Individuals with Disabilities Education Act.
National Early Childhood Technical Assistance System
www.nectac.org
This is the site for the National Early Childhood Technical Assistance System. They provide training and technical assistance to Part C and 619 of Part B (3-5 year old program). This site provides information on many areas including evaluation/assessment, autism, service coordination, and inclusion. The next site is an extension of this one.
www.nectac.org/contact/ptccoord.asp
This site provides a list of the names, addresses and phone numbers of the Part C systems in each state. This could be useful when families are moving from NJ to another state.
Autism Speaks
www.autismspeaks.org
Dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention and treatments for autism.
Autism Society of America
www.auitsm-society.org
The primary mission of ASAF is to raise and allocate funds to address the many unanswered questions about autism.
Family Village
www.familyvillage.wisc.edu
This site integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide services and support. It includes information on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, etc.
Zero to Three
www.zerotothree.org
Information about infant development in the first three years.
National Organization of Rare Diseases
www.rarediseases.org
Web site for the National Organization of Rare Diseases. Has a information on over 1,100 rare diseases. Also has extensive listings of support groups and organizations.
Hunterdon Healthcare System’s Web site is provided for informational and educational purposes only and is not intended as medical advice nor is it intended to create any physician-patient relationship. This information should not substitute for a visit or a consultation with a health care provider.
These links are provided as a service. Hunterdon Healthcare System does not endorse any organization, program or service listed here, or their philosophies. Responsibility for the content of these sites rests solely with those organizations.